This was a piece I have submitted to the ASHA Leader, a publication for nationally licensed speech pathologists and audiologists. It may not get published but we will survive, we always do.
I
pride myself on being a mother. When I had my first baby I thought I
automatically joined the ranks of the families I worked with because
now, I too, had a child. But it does not work that way. As a
therapist you are on “one side of the table” and gaining the
perspective of the other side is something that can only be learned
the hard way. On May 21st
of 2012, I started a journey to the “other side of the table.”
That was the day my twins were born. I had healthy full-term twins,
but, unfortunately my son, Easton, had issues. It all started with
jaundice. Then there were latching problems, as well as colic. I
quit eating gluten, dairy, eggs, citrus, and tomatoes. I taught
Easton to latch. I weighed him two times a week and frequently
consulted with a nutritionist and a pediatrician. At Easton's one
month checkup, I heard the words Failure to Thrive, which did not
resonate well with me. Around this time I started noticing Easton
was not responding to noise, would not look at my face, and was very
unhappy. Although premature, the diagnoses of Autism and Cerebral
Palsy were already crossing my mind.
At
age three months, I had him evaluated by the early intervention team,
with whom I work. Easton was seen by my colleagues, the people who
threw me a baby shower, the people I eat lunch with, and the people I
rely on to help break bad news. Now I was on the other side of the
table. It was terrifying.
Easton
was diagnosed with a sensory disturbance, hypotonia, and mixed
development. He failed his vision screening. It was recommend he
receive occupational therapy (OT) and visit an ophthalmologist. We
also were introduced to an Individualized Family Service Plan (IFSP)
and a service coordinator. I cried.
The
ophthalmologist visit revealed Easton had moderate farsightedness
which allowed him Visually Impaired Services (VI). Then a follow-up
ophthalmology appointment, only one month later, revealed his vision
was fine. With a diagnosis of Visual Maturation Delay, VI services
were discontinued.
Next,
we started OT. I did infant massage, I swaddled, I made things
visually stimulating. I dyed my blonde hair dark brown and started
wearing bright red lipstick. This kid was going to look at me. Then
he did. He even smiled. He started eating better, sleeping better,
and playing better. OT
was short lived. We were then introduced to physical therapy and
that is where we stand at present. As I come up on Easton's six
month review, I reflect on what it feels like to be on the the other
side of the the table. We still have a ways to go, but to be honest,
I feel blessed to say I am a speech pathologist who has been on both
sides of the table. I have gained a different perspective for what I
do and luckily have Easton to thank for this experience!
I love that you dyed your hair for him :) And I'm glad he's making such progress! We are starting with Elizabeth's EI and PT next week for the muscle tone and hope to see improvements soon.
ReplyDeleteI love my kids, what can I say!:) Yah for Elizabeth, PT is amazing and you will see huge improvements in no time!
DeleteOkay I am loving this! What a GREAT Mom you are!!!
ReplyDeleteYou arr such a great mom! Keep up the good work.
ReplyDelete